So I’m sat here in the little portakabin rest room at Aylesbury Bus Station, just looking out the window watching the occasional bus go past thinking it was about time for an update, so I thought I’d whip out the ipad and type something up.
Well firstly my psoriasis is back. My latest blood test showed that my current medication had damaged 21% of my liver, so I had to stop taking it straight away. Within a week my skin was covered in spots again.
After being clear for nearly 5 years it takes a bit of getting used to the stares from other people, and the constant itching. Itching that’s so bad you want to get a knife and just cut chunks of your skin out! It’s really done nothing for my confidence of late. I’m waiting to go back to the hospital this coming Friday, to see if funding has been approved for my next treatment, Humira. This is a fortnightly injection which is used to treat my psoriasis and the psoriatic arthritis which I now also have. I’m a little bit concerned by this drugs list of side effects, but the way it’s effecting me at the moment I don’t have a choice, even if I just get a few years relief from the skin and joint pain it will be worth it.
On the bus side of things not a lot to mention really, I’ve been back working at Aylesbury depot for a few weeks now and it’s going okay, The cost of commuting has rocketed since I was last here, so not sure I’ll be able to continue the travelling in the long term, especially as I am on a “new starter” rate of pay for three years, but we’ll see how it goes.